Thursday, April 04, 2013

things I've noticed about the 'new me'...

 I've noticed changes in myself over the last few months and I dont know if its the effect of the M on me, or maybe the keppra (I only take two 500mg pills a day). all I know is that I'm not the same person I was before January this year.
my memory is the worst thing that bothers me. I worry sometimes that what if one of these days I dont remember the important things, like my kids or hubby? birthdays, anniversaries, etc. I already forget the simple things. like when my daughter and I were out eating, I forgot that I'd eaten my bread, so when I came back from teh buffet, I was sad the waitress had taken my plate because she'd taken my bread. my daughter tole me I'd already eaten it. it sounds so simple, but it bothers me so bad. one night I couldnt remember if I'd actually washed my body during my shower because I couldnt remember what bath adn body scent I'd used. it's every day things that do this. I try to joke about it, but it really bothers me.
this week we're on vacation. love it as its only my 2nd time to the beach and only our 2nd vacation in our 21 years together. it was so stressful getting everything together for a family of 8 though! one thing I noticed when we got here, we're on the 8th floor and I swear I could feel the building moving when we got off the elevator. I do have vertigo and have trouble going up and down stairs, but dont have issues standing on the balcony. I attribute it to standing still and not trying to navigate my way down the height.
I almost had a breakdown emotionally when we went to walmart to get groceries the other day though. our own walmart I can handle, but this, being bigger and not known to me was like dunking me in a bath of cold water. we made it through getting the food and I still needed to pick up a hair dryer. I didnt know where to go, so hubby was walking and I was trying to follow. I eventually just stopped at an endcap and was kind of lost. he asked me what I was doing adn I wanted to cry and kinda went off a bit saying I didnt know where to go!
I feel silly for these things, being so randomly emotional, not being able to walk without putting a hand out to bounce myself off a wall or table so I dont go sideways. forgetting something 3 seconds afterwards, being off in a daze some days and just not being all there becasue they're my 'bad days'. it's not the me that I've always known. it freaks me out and I'm still coming to terms with it.
I go in for my 2nd MRI in a couple of weeks. I'm nervous and butterflies started last month! how do those who have been on W&W deal with this for years? :( 
my family has been great. so great. my close friends have been wonderful. I think they probably take it more seriously than I do, or worry more than I do, or perhaps voice their concerns more than myself. I'm a kind of quiet person and dont like to worry others with my 'issues'. my hubby wants me to quit this and open up to him more. I broke down about my memory issues this week and how they bother me. he was glad I talked with him and even cried some himself. but at the same time, he mentioned me dealing with this so I can get back to being the person I used to be. I've read the stories, I've been researching the way things change. *sigh* I konw he'll love me no matter what, but I'm having a hard time learning to love the new person I am so far, even though I know its not been that long yet. and I've not even been through much yet. bleh.
guess this is what happens when you hold stuff in, it just kinda gurgles out. lol!

Wednesday, March 13, 2013

Another headache moving in. Id been doing so well the last week.
*sigh*

Sunday, March 10, 2013

today has been a good day physically. those have been few and far between since Jan 15th, so this is nice! I feel normal today actually. sometimes I wonder if that's good or not. If i feel good, I may tend to forget that I need to take medication to keep me that way. :-p not that I want to feel bad, it's been a booger dealing with that. it's always just an up and down thing. one day I can be great and then *BAM* it's in the crapper.
bleh.
I'll take my good day though! I'm thankful for it! *whew!*

Monday, February 25, 2013

Things have changed

yeah, I know I've been quiet in here.
For those who hang out with me on FB, you'll know (probably) what has made this year be a doozy so far.
On Jan. 15th I was taken to the ER after having 2 seizures. No, I'd never had any type of seizure in my life. After much testing, another 'almost seizure' and many more testings, we found out I am housing in my brain a meningioma tumor. yes, they're benign (supposed to be). the one that is nesting in my head is nestled under my pituitary gland, skull based in the cavernous sinus, about 1" and egg shaped. it's wrapped around my left carotid artery as well and pushing up on my left temporal lobe. that's what caused the seizures. it was messing with my head, literally.
We've recently had our 2nd opinion at Baptist Hospital in Nashville and have decided we've found our neurosurgeon for when the time comes. As of now, I'm under Watch and Wait (W&W) to see how the tumor decides to play.
I go back in mid-April for another MRI to check against the first one I had in Jan.
Right now, no one wants to touch it because the risks definitely outweigh the benefits because of its location and all the sensitive type stuff it's snuggled up and around. Yeah, I do like feeling my face, having the use of my eyes and stuff like that.
I'm on medication for the seizures. It took me a good month to adjust to that. harsh stuff that it is, and I'm on a pretty low dose. I feel for those who have to have a high dose.
I did have symptoms before anything happened, but I wrote it off as "getting older" (I just turned 40 this month!) Now, I know what I've actually got going on. I also find new things that make me wonder "is this part of that, or should I just ignore it?" I hate doubting myself.
Its been a bumpy road already. I have faith that everything will be fine. But still, I'm only human and I've gotten a shake-up. My hubby (of 20 years now) is wonderfully awesome! I cant ask for better. My mom has been by my side almost every day as well. She's my taxi cab too since I cant officially drive til mid-april now.  Dont know what I'd do without her!
The kids are fairing well. the older ones understand better than the younger ones of course. we try to keep things as normal as possible. the best thing I think.
This will likely be a long fight. whatever it turns out to be, I'm wearing my boxing gloves and am ready to fight!

Wednesday, January 09, 2013

Saturday, January 05, 2013

Ho hum

Very bored at work...

Wednesday, November 21, 2012

Saturday, November 03, 2012

College

Off to Berea today to meet the baseball coaches again and tour the campus.

Tuesday, September 11, 2012

17

Our oldest turned 17 this past weekend. He still will kiss his mamma on the head and tell me he loves me, even if his friends are there. He gets comps all the time on his manners. He still drives me crazy with his antics. He still loves messing with his daddy. He still impresses us with his goodness and strengths. He still loves the Lord and he still feels blessed.
We feel more than blessed to have him as ours.

Sunday, July 29, 2012

Our kitten Boo

She's pretty easy going to say the least!


Saturday, June 16, 2012

Crappy day at work. Bleh.

Friday, June 15, 2012

Off for a girls lunch with April. Olive Garden, makes my heart sing!

Sunday, June 03, 2012

Father, Son and Friends playing


Worn out from a weekend at the games.


Caber  toss


Saturday, June 02, 2012

The sound

On our way to a Celtic rock concert

The majestic sounds

Of a bagpipe band in full sound.

Friday, June 01, 2012

Off to work

Long day ahead but its all good. This weekend we're going to the Highland Games for Katlyns Birthday. I'm so excited!  I'm hoping her friend gets to come but if not, we'll make it super special for her.

Sunday, February 19, 2012

This 'happy birthday ' will b better.

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Tuesday, February 14, 2012

Birthday bread! Yes, My birthday. :-)